Submitted by nedragarrett_CDC on 2022-04-29
Additional Supporting Documentation for CDC's SOGI Submission
Please see the attached
Data used to categorize individuals for identification, records matching, and other purposes.
Data Element |
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Sexual Orientation
Description
A person’s identification of their emotional, romantic, sexual, or affectional attraction to another person Applicable Vocabulary Standard(s) Applicable Standards
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Submitted by nedragarrett_CDC on 2022-04-29
Please see the attached
Submitted by RUy on 2022-04-29
Collecting SO/GI data is essential to providing high-quality, patient-centered care for transgender people. ONC has provided good leadership on the standardization of this content in USCDIv2. FQHCs are required to collect these data for all their patients and report them to HRSA so these data are well established and are imperative to the patient-centered provision of care.
To address the lack of SO/GI data in health systems, the Department of Health and Human Services’ (HHS’s) Healthy People 2020 included an objective to “increase the number of states, territories, and the District of Columbia that include questions that identify sexual orientation and gender identity on state level surveys or data systems” to improve “the health, safety, and well-being of lesbian, gay, bisexual, and transgender (LGBT) individuals.” Increasing the number of population-based data systems that collect standardized data on (or for) lesbian, gay and bisexual populations and on (or for) transgender populations and expanding the availability of sexual orientation/gender identity (SO/GI) statistics have also been priorities for other federal agencies.
NACHC believes sexual orientation is a core component of many patients’ identities. However, it is also associated with serious health inequity and health disparities. Furthermore, it is clinically relevant to a number of domains of sexual health, trauma and interpersonal violence, substance abuse and mental health risk factors. Michigan students identifying as lesbian, gay, or bisexual reported higher rates than their peers for measures of bullying, missing school due to fear for their safety, and were more than three times as likely to report seriously considering suicide in the past year.
We strongly support the requirement for sexual orientation data to be captured in a standardized way in EHRs to support patients’ identities, reduce health disparities and facilitate effective clinical risk that may be modified by sexual orientation.
Submitted by nedragarrett_CDC on 2022-04-29
Subject: Additional values in the valueset
Comments: Current sexual orientation values in USCDI v2 has ‘Something else, please describe’ which represents different sexual orientation categories that may have specific and different needs when compared to another distinct group with different sexual orientation. For example, as per USCDI v2, person with sexual orientation as ‘pansexual’ falls in the same group as person with e.g. ‘asexual’ as their orientation. These two groups may have completely different physical, social, emotional health needs which goes unnoticed in the current context of health equity.
The sexual orientation valueset being proposed is as follows:
*New values being proposed
Submitted by nedragarrett_CDC on 2022-04-28
CSTE Comment:
Submitted by geneticist on 2022-01-23
Sexual orientation should include additional options such as asexual, demisexual, and aromantic. See https://about.gitlab.com/handbook/people-group/gender-pronouns/ for further discussion.
Submitted by lhiatt on 2022-01-19
I agree with the comment by Ravi.kafle; It is better to expand options to accurately capture and destigmatize other sexualities. The new values being proposed by them appear a marked improvement.
Submitted by ravi.kafle@doh… on 2021-09-29
Current sexual orientation values in USCDI v2 has ‘Something else, please describe’ which represents different sexual orientation categories that may have specific and different needs when compared to another distinct group with different sexual orientation. For example, as per USCDI v2, person with sexual orientation as ‘pansexual’ falls in the same group as person with e.g. ‘asexual’ as their orientation. These two groups may have completely different physical, social, emotional health needs which goes unnoticed in the current context of health equity.
The sexual orientation valueset being proposed is as follows:
*=New values being proposed
Submitted by zbarber on 2020-11-12
The NY eHealth Collaborative (NYeC) supports including sexual orientation in the USCDI v2 due to its widespread use and clinical value for LGBTQIA individuals. We suggest revising the element description to refer to the Lamda Legal definition: "People’s sexual attraction to same or different-sex people."
Submitted by tcarr_sonoma on 2023-03-16
Additional values in the valueset Comments:
Current sexual orientation values in USCDI v2 has ‘Something else, please describe’ which represents different sexual orientation categories that may have specific and different needs when compared to another distinct group with different sexual orientation. For example, as per USCDI v2, person with sexual orientation as ‘pansexual’ falls in the same group as person with e.g. ‘asexual’ as their orientation. These two groups may have completely different physical, social, emotional health needs which goes unnoticed in the current context of health equity. The sexual orientation valueset being proposed is as follows:
*New values being proposed