Submitted by rmcclure on 2023-04-17
Use of "Sex" data element
Per the Gender Harmony Project as discussed and voted on 2023-04-17:
There are many implementations that support both Sex Assigned at Birth and Sex. The data element "Sex" as described by USCDI v4 does not have a clear definition and by choosing this general phrase USCDI does not directly align with the aspirations of the Gender Harmony Project. Yet, the Gender Harmony Project team acknowledges that "Sex" does have broad adoption and use for activities such as patient matching. It is important that national policy continues to emphasize the importance and adoption of more specific and meaningful properties like Gender Identity and Sex Parameter for Clinical Use. We recommend that ONC:
- Retain the Sex USCDI Data Element in the near term.
- Monitor the adoption of Sex Parameter for Clinical Use.
- When industry adoption is sufficient, incorporate Sex Parameter for Clinical Use into USCDI.
- After adopting SPCU, eventually retire Sex from USCDI.
The Gender Harmony Project did support the US Core decision to implement USCDI Sex using the Sex Assigned at Birth extension.
Submitted by yale-coredQMRoadmap on 2023-09-19
CMS-CCSQ/CDC Joint Support for Sex defin. updates for USCDI v5
CMS-CCSQ, along with CDC, repeats and supports the ISWG and HITAC Recommendations on Draft USCDI v3 (April 13, 2022) and Draft USCDI v4 (April 12, 2023) to include the HL7 Gender Harmony Project’s data elements, definitions, and value sets related to Sex, Recorded Sex or Gender (RSoG) and Sex for Clinical Use (SFCU), in addition to the existing standards for capturing sex.