Submitted By: Dave Shekhar | |
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Data Element Information | |
Use Case Description(s) | |
Use Case Description | This data element is of extreme interest to Next of Kin/Related Parties and of high value to Care Team (needed for revised Care Plan) and would immensely help with timely and seamless Transition and Coordination of Care between different settings and care givers. |
Estimate the breadth of applicability of the use case(s) for this data element | 8+. Multiple stakeholders, including PCP, Care Manager, Inpatient facilities, LTC facility, SNF, Labs, Radiology centers, ED. |
Supporting Attachments |
Terminal Illness Status.txt |
Healthcare Aims |
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Maturity of Use and Technical Specifications for Data Element | |
Applicable Standard(s) | Terminal illness (Code 300936002) SNOMED code. https://www.hipaaspace.com/medical_billing/coding/snomed/300936002 https://www.findacode.com/snomed/162607003--terminal-illness-early-stage.html https://build.fhir.org/ig/cqframework/opioid-cds-r4/ValueSet-limited-life-expectancy-conditions.html https://www.hipaaspace.com/medical_billing/coding/snomed/300936002 |
Additional Specifications | CDC Opioid Prescribing Support Implementation Guide |
Current Use | In limited use in production environments |
Supporting Artifacts |
CDC : Opioid Prescribing Support Implementation Guide https://build.fhir.org/ig/cqframework/opioid-cds-r4/ValueSet-limited-life-expectancy-conditions.html https://build.fhir.org/ig/cqframework/opioid-cds-r4/index.html |
Extent of exchange | 2-3 |
Supporting Artifacts |
Please note: Not aware of exact number of Prod environments for CDC Opioid Prescribing Support Implementation Guide https://build.fhir.org/ig/cqframework/opioid-cds-r4/ValueSet-limited-life-expectancy-conditions.html |
Potential Challenges | |
Restrictions on Standardization (e.g. proprietary code) | No restrictions. Part of SNOMED-CT. |
Restrictions on Use (e.g. licensing, user fees) | License required to use SNOMED-CT codes which is already procured by NLM. |
Privacy and Security Concerns | No concerns. This data element should be encouraged to be exchanged. |
Estimate of Overall Burden | Minimal as other initiates like Cures Act, FHIR R4 mandates, CMS-9115 etc already faciliates lot of ground and foundation work. |
Other Implementation Challenges | No challenge to implementation. Aligns with PI and other ONC and CMS mandates. |
Assessments of a health-related matter of interest, importance, or worry to a patient, patient’s family, or patient’s healthcare provider that could identify a need, problem, or condition.
Data Element |
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Terminal Illness Status
Description
Recommended to have element for Terminal Illness Status in this Data Class in USCDI V3. This is a matter of interest to Next of Kin/Related Parties and of high value to Care Team (needed for revised Care Plan) and would immensely help with timely and seamless Transition and Coordination of Care between different settings and care givers. |
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