Submitted by HCapon on 2023-09-20
PACIO Recommendation for Living Will Data Element
- Data Class: Advance Directives (Level 1)
- Data Element: Living Will (Level 1)
- Recommendation: Rename the data element “Living Will” to “Priorities Upon Death” and advance it to USCDI Level 2.
- Rationale: The PACIO (Post-Acute Care Interoperability) Project, established February 2019, is a collaborative effort between industry, government, and other stakeholders, with the goal of establishing a framework for the development of FHIR implementation guides to facilitate health information exchange. While the concept of “Living Will” remains important to be included in the USCDI, further community discussion led to modifying the data element from “Living Will” to “Priorities Upon Death.” The notion of “Living Will” is better described as a bundle of data elements which identify a person’s “Treatment Intervention Preferences,” “Care Experience Preferences,” and “Priorities Upon Death”. Over the past year multiple organizations have used these terms in CDA and FHIR standards to share this important patient generated information. In addition, the CDA guidance has been balloted twice within HL7, the FHIR IG is in the later stages of ballot reconciliation and due to be published in the new few months. Since USCDI V4 includes data elements for Treatment Intervention Preferences,” “Care Experience Preferences,” “Priorities Upon Death” is the only information still needing to be captured.
Submitted by EmoryHealthcare on 2023-09-20
Advance Directives Data Class - L2 Data Elements as of 9.20.2023