The Interoperability Proving Ground has been archived and is no longer actively maintained. All information identified as archived is provided for reference, research or recordkeeping purposes.
Interoperability Proving Ground (IPG) submissions within the ONC Tech Lab are submitted by healthcare, technology and development organizations that are invested in Health IT and Interoperability and want to share, learn and collaborate with similar stakeholders in the US, and around the world.
To view all submissions, please view the IPG link located within the ONC Techlab.
RAREwithCOVID
Description
There are estimated to be over 300 million people living with one or more of over 6,000 identified rare diseases around the world. On the whole, rare disease patients are at higher risk of serious illness by the new coronavirus and will also have uniqueness as therapeutics are developed. The RAREwithCOVID registry is IRB approved and allows any patient with a rare disease to report if they have tested positive to COVID-19. The project is working with many patient advocacy groups to exchange data and welcomes request to collaborate with others interested in this rare disease population.
Start Date
04/08/2020
Projected End Date
04/08/2025
Project Point of Contact:
jasonremove@removeacrosshealthcare.com
Project Results
None